I Had an edometrial ablation for dysfunctional uterine bleeding, 3 months later I was in the ER for severe abdominal pain

I Had an edometrial ablation for dysfunctional uterine bleeding in April of 03, 3 months later I was in the ER for severe abdominal pain. Each and every month (approx 3 weeks) I have this same abdominal pain. It feels like labor pains. I have ab and very low back pain that never diminishes. My abdomen gets very tender and sore to press or touch. I have to have a hysterectomy, as my DR suspects adenomyosis. I had Cat scans ultrasounds and MRI and didn’t detect it. MY DR said it can be undetected. What do you think?

Dear Bizzy-
Adenomyosis is only confirmed with tissue biopsy. Most doctors will diagnose the disease based on symptoms…like enlarged uterus, painful periods,and heavy bleeding with large clots. Sometimes an MRI can detect changes to the uterine muscle, but diagnosis is never certain without tissue samples.
Your case is a classic example of the problems that can arise when decisions are made to treat symptoms only….and not the actual underlying disease process.
There is no need for a hysterectomy, if you can remove the adenomyosis from your uterus.
Good luck

I have an enlarged uterus,painful periods,clots but nothing on MRI or ultrasound. My uterus is 12cm. I am 40 and have my tubes tied. What could be going on?

Denise

Hi Denise-
There is a very high probability that you have Adenomyosis. This disease will not always show up on diagnostic testing…you need a tissue biopsy for a confirmation. We have seen a very high incidence of correlation between women with adeno and a history of tubal ligation.
Your gyn will only be able to treat you with a hysterectomy, our FAS procedure can help you. We laser remove the disease and reconstruct your uterus..you will be virtually symptom free. I know our program can help you get your life back.
Give my office a call.

Hi Dr. Del Junco,
I am 26 years old and started having pain in my left leg over 6 months ago, there are points where I am unable to walk or lift my leg, also having pain during my menses, loosing hair and unusual break outs, I am fatigued and sometimes can’t get out of bed. After going to the er and different md offices, I just found out I may have adenomyosis. After having an mri, ultra sound and trans-vaginal ultra sound my md says she suspects endometriosis and adenomyosis. What does that mean? “SUSPECTS” I am in a lot of pain and have been suffering for over 6 mos. now. I am now on viox and yasmin, it’s only been about a week but have felt no relief. Is a hysterectomy the only answer? With your surgery is it possible to have more children?

Dear Kiedryn-
Your doctors have said they “suspect” adeno because this disease cannot be confirmed without a tissue biopsy. Scans and ultrasounds are not specific enough to give a “firm” diagnosis. If you have adeno…most gyns will treat you with hysterectomy….FAS can treat your disease, but your chances of fertility are greatly diminished after surgery. In order to treat the disease, we must remove the damaged part of the uterine muscle..this will prevent the ability to carry a child.
The pain and heavy bleeding is stopped and the uterus still functions hormonally and sexually, but child bearing is usually not possible.
I would suggest a complete hormone panel, inclusive of thyroid..to rule out other issues compounding the problem.

Hello Dr, Junco,
Today Feb 9,2005 I received a report as a result of getting a pap smear. The report stated I have an Enlarged Uterus I am very concerned and nervous. On Feb 27 I will be 40 years old and have not had a successful pregnancy yet. In both 2002 and 2003 my husband and I tried conceiving through a fertility clinc, did not work. I do have a history of fibroids what do you suggest?

Dear Concerned Lady-
Thank you for your posting.
Many doctors will recommend hysterectomy with this diagnosis…we do not advocate that surgery.
The uterus has many functions: pregnancy, hormone production, sexual response and maintaining a space in the pelvis to prevent prolapse of other organs.
Our FAS procedure can laser remove the disease, adeno and fibroids, and reconstruct the organ. Our patients return to a “normal” quality of life post surgery. I know we can help you.
Good luck

hello , my name is Yvette, im 49 years old and have Adenomyosis a couple of years ago I had the heavy bleeding and pain. My obgyn give me a exam and biopsy of the uterus and said I had thickening of the uterus and fibroids, she also did and ultra sound. I then I had a DnC & balloon treatment, no picnic, but I had 2 years of feeling better. Now its back and my doctor says a vaginal hysterectomy is my best cure. I want to check my options because I have Fibromyalgia, severe, but can control to a point with exercise and nutritioal, and now with the hormones and surgery I’m pretty sure the Fibro could take over, cause it has in other cases and its not pretty. I am a fitness trainer and work at staying strong and healthy, so I would like to approach this problem with the same atitude, at this point its not so easy.

Dear Yvette-
Adenomyosis is still treated most often with hysterectomy by traditional gynecologists.
We do not advocate nor recommend that approach.
Our FAS program is one of the very very few long term effective options for the pain and bleeding.
Surgery may effect your fibromyalgia but we would recommend a procedure where you are preserving your organs and not removing them. This will be less disruptive to your body, as a whole.
Hysterectomy has many many irreversible side effects, even without the fibromyalgia consideration……hormone imbalance, sexual dysfunction, depression, early heart disease and osteoporosis and prolapse of bladder and bowel.
Please do your research carefully before hysterectomy.
Our program can help you remove your disease and save your uterus.
Good luck

Hi my name is Bibi. I am 37 for the past few yrs I’ve been having pain in my pelvic area cramping a lot about 15 months ago my doc was treating me for endomitriosis(lupron) come to find out that I didn’t have that. About a week ago I end up in the er and they did an ultra-sound to find out that I have adenomyosis I went in to the doc office and he did a biopsy, I am waiting for the result in the meantime he is telling me to use the birth control that it will help me. If that does not work he is going to find another alternative which is laser surgery. Please tell me if I should go ahead with what he is telling me.

Dear Bibi-
Uterine biopsy for Adeno are often unsuccessful at diagnosing the condition. The biopsy may miss the part of your uterus that is infected…because this is a “blind” procedure.
If you have Adeno..BCPs can slow the spread temporary but eventually the added estrogen in the pills will make the disease worse..you need to surgically remove it from the uterus.The more you delay the more it will spread.
Our FAS program uses a laser to assist with the removal of the disease and retard the spread..we would advise a treatment like this prior to removing your uterus. There are too many irreversible complications with hysterectomy.
Good luck

Dear Dr. del Junco, Jr:

I came across your website while doing some research online. I am 43 and was diagnosed with Adenomyosis and underwent UAE in 2002. Nine months after the procedure, I had recurrent symptoms – severe cramps and heavy flow. Not only that, ever since the recurrence, I have been having sharp pain in both arteries that were treated, backaches and leg cramps that start immediately after my period ends and last up to 10 days. I just had a physical last week and my blood count is 6.9. My doctor recommended emergency blood transfusion, which I am strongly against and hysterectomy. I have resisted hysterectomy for 3 years, but now I feel I’m at a dead end. Can you help me? I will be anxiously waiting for your opinion.

Thanks,
RN

Dear RN-
Thank you for this posting…this is further evidence that UAE is often unsuccessful in association with Adenomyosis….especially the diffuse form of the disease.
Our FAS procedure can help you..we would laser excise the diseased part of your uterus…to reduce the pain and bleeding…and then treat the remaining muscle to retard the spread. Our patients have very very good outcomes post surgery.. minimal periods and pain that can be controlled with a few Advil, at most.
Please give my office a call…I know we can help you without hysterectomy.