Had surgery to remove fibroid-there was NO fibroid

I’m a 36 year old female diagnosed with having a 10.5 cm fibroid. I had 2 ultrasounds from 2 different Dr.’s and saw a total of 4 Dr.’s before making the decision to have the fibroid removed by having an open myomectomy.

I went in for my surgery last Friday, March 8th. When I awoke, I was told there was NO fibroid and I was diagnosed with adenomyosis. This was a shock as not only had I never heard of this before, but I was told by all 4 Dr.’s that I had a fibroid tumor!

Why didn’t any of them suggest that this may have been discovered?

My fertility is of the utmost importance to me. I currently have no children and desperately would like to have a child.

My Dr. did not remove the adenomyosis. He said my uterus is about 3 times the size of a “normal” uterus and that it was “spongelike”. He told me my ovaries looked fine and put everything back in its place. He told me to try to get pregnant after I recover and that the adenomyosis would go into regression and should not interfere with the pregnancy.

Is all this true? Please help.

Dear dwilton-
Adenomyosis is a form of uterine endometriosis that strictly attacks the uterine muscle. It can appear in a solid form that may look very similar to fibroid tumors. Most women however, have the diffuse form of the disease that spreads out throughout the uterus and is nondetectable on most scans or tests. It usually produces an enlarged uterus, and women usually have painful, heavy periods with large clots.
This disease will create infertility!!!! The longer you wait the more difficult it will be to become pregnant and the harder it will be to maintain the pregnancy-many women miscarry in the early terms.
I recommend all my patient with this potential diagnosis to not wait to have their families….eventually the disease will require surgery to slow the progression and minimize the symptoms.
Good Luck