Author | Message | |
Anonymous |
I have a friend who has been diagnosed with adenomyosis. She is in terrible pain and has been out of work for several months. She is in her middle 30’s, has not had any children yet but desperately wants to have children sometime in the future. Knowing that she wants to try and have children, her doctor has been trying to stop the pain by giving her a series of nerve blocks. I believe it is a series of diagnostic and therapeutic nerve blocks. So far the blocks have not been successful and her pain continues. Has anyone heard of this to treat adenomyosis before? What are her chances of being able to ever have children? I am not very familiar with this disease and I am just trying to learn more. Any information would be helpful. Thank you. |
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Dr. del Junco Jr. (Doctor) |
Dear Anonymous-Chances are the blocks will not work for this disease process. It is a treatable disease and we have had success with FAS. It is difficult to comment on the fertility issue without knowing the extent of the adenomyosis. Please refer to that section of the website. |
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srpbgpjr |
how long does it take the disease to show its symptoms? can you have it for years before you know it? i had a tubial ligation in 1994, a reversial in 1997 and i just had a hysterectomy 2 weeks ago. i have always had painful periods. during the time span from 1986 to 1992 i also had2 d & cs and 2 laprascopic proceedures to remove cysts. also at the birth of each child i had to have cyst removed as well. which were 1986,1990,1994. could this adenomyosis have been the problem all along? |
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Dr. del Junco Jr. (Doctor) |
Dear srpbgpjr- |
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Anonymous |
I was just told by my gyn that I “probably” have adenomyosis. The only basis for her diagnosis was that I have been having lower back pain for about a year and heavy bleeding and cramps with my periods (I’ve always had terrible cramps). I will have a ultrasound exam as a follow-up. I had a myomectomy about 6 years ago and at that time my doctor did not mention anything about adenomyosis. My fibroids have started to come back. I am 43 and have never been pregnant. I was married for 5 years and tried to get pregnant then with no luck. Now I am divorced but I do want to have a baby. What options are available assuming I do have adenomyosis. What about in vitro pregnancy or othermodern fertility techniques? Or should I give up hope and accept that I will never be able to have a baby? Also, what causes or induces adenomyosis and what is the relationship between it and endomitriosis? |
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Elika |
Hello and thank you in advance! I recently had a laporoscopy in search of endo. My doctor said that he found very little endo, but that my uterus was enlarged, 8-10 but I don’t know what that means. He also said that it is very soft and I have fibroid tumors. He never said how many. He feels that my reason for pain is Adenomyosis. He resected the nerve endings to the uterus, hoping that would end/ease my pain. He said that if, in two months or so, I am still experiencing the severe pain with ovulation/menstruation I could have the uterus removed. Can you tell me about the size of the uterus? Again he said 8-10. And is it bad if the uterus is soft? I had the procedure on 6/8/99 and have a followup appt. in early July. Is there anything else I should be concerned about or any questions I should ask him? I left a message for him a week ago, but have heard nothing. Again, I thank you for your help, and for this comprehensive website. |
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Dr. del Junco Jr. (Doctor) |
Dear Elika- |
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april |
i have a question im from Canada..and recently i have been in and out of the hospitals here and 3 weeks ago i had a laprascope done…to remove a cyst that burst…when they did the scope the doctor found that i had extreme endmetreosis and they drained the fluid only no removeal of they cyst was done…now as of last Friday i started ovulating and again another cyst burst i was admitted and stay overnight for observation…they have me on naorixen 500mg …now since they dont have the alternative choice here in Canada what im wondering if or what the normal outcome is of my situation thanks for listening april |
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Anonymous |
Thank you for this website. I am in the throes of a yet to be confirmed diagnosis of adnemyosis, as well as having undergone a laparoscopy, 6 months ago. Like others on this message board, I too have been told by my doctor that my uterus is enlarged, yet the fibroids aren’t significantly large. A myomectomy was attempted during the lap procedure. However, I have had little relief from my symptoms. I am 38 years old, and I have no children. The past year has been very difficult, as I struggle to try and understand the reasons for my discomfort. It is confusing and scary, because I don’t feel that I am improving, yet the only thing that’s been done these past six months is periodic monitoring. I will carefully browse this website for some information that can give me a more positive outlook. Right now I am simply depressed, because I don’t know what to expect. |
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Dr. del Junco Jr. (Doctor) |
Dear April- |
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Dr. del Junco Jr. (Doctor) |
Dear Anonymous- |
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Anonymous |
I’m being treated with an antibiotic and anti-inflammatory. The doctor suggets that the next course of treatment is Megase. What are the side effects of this drug? |
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Dr. del Junco Jr. (Doctor) |
Dear Anonymous- |
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Lorri |
I am 38 years old and suffer from Adenomyosis. I have had surgery in the past to remove fibroids. In January 99 I had a D & C to help with heavy bleeding, swelling and pain. My condition improved until this past month when the swelling, cramps, back pain, and pelvic pain returned. They are present almost every day. My gynogologist says a hysterctomy is the only answer. I don’t want to do that if at all possible. Do you know of anyone in British Columbia or Canada that performs FAS? Also, would an endrometrial (sp?) ablation solve the problem? Thanks for any help you can offer. |
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Dr. del Junco Jr. (Doctor) |
Dear Lorri- |
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JKelly1135 |
Dear Doctor |
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Dr. del Junco Jr. (Doctor) |
Dear JKelly- |
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Shiona |
Dear Dr. del Junco Jr., |
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Dr. del Junco Jr. (Doctor) |
Dear Shiona- |
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Anonymous |
I am 48 years old & have anedomyosis. Have had it for several years. I’m holding off on the surgergy hoping I’ll go into menapause. I have MS & surgery really scares me, but the laser technique sounds a little better. Would like to know more about it. Recovery time, etc. Sue from N.H. |
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Sue |
I was diagnosed with adenomyosis and, unfortunately had a hysterectomy. Now, for the past 8 months, my ovaries have a complex cyst on the left side which is 1.9 cm in size and producing pain lasting 5 days on one side. I live in NY and the docs here do not believe in organ preservation. The one I see wants to pump my body full of birth control pills for two months to see if it stops the pain. He totally disregarded the cysts. What about progesterone? shouldn’t I be taking that? He won’t prescribe it because I don’t have a uterus. |
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Dr. del Junco Jr. (Doctor) |
Dear Sue from N.H. |
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Dr. del Junco Jr. (Doctor) |
Dear Sue- |
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Karen |
I am 33 years old and have been diganosed with severe adenomyosis, mild endometreosis, cyst, and adhesions. I would like to have one more child. Is this possible with my uterus being so big? Could I carry a baby full-term? I recently had a tubular pregancy and before that a miscarriage. Are these situations related to my disease? Is FAS the only treatment for my disease? My doctor recommends a hysterectomy. |
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Dr. del Junco Jr. (Doctor) |
Dear Karen- |
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mary m. |
I am 42 yrs old, newly married and trying to have children (none at this time) – after a year of severe pain, heavy bleeding, back pain and ER visits, I had a laparoscopy/D&C done in November 2000. My GYN found that my uterus was ‘boggy’,spongy and enlarged. My tubes, ovaries were clear which was a relief. The GYN could not give me a clear diagnosis of Adenomyosis but felt all symptoms pointed to it. Because of my desire to have children and my age, she has strongly suggested that I get pregnant now or else the pain/symptoms will return soon. After Clomid and months of trying, I still am not pregnant (stress?) and the pain/symptoms have returned in full force. My GYN said the only option that I have now is a hysterectomy. I am devastated and do not want this operation, however, I am in so much pain, especially in my lower back (she indicated that I have implants lodged on the posterior of my uterus) – I have trouble functioning. Also, at the age of 22, I was diagnosed with ovarian cysts and had them removed by laser – my periods have always been heavy, irregular and painful. I am always tired, in pain and have horrible mood swings. If my fertility cannot be salvaged, I want to live pain free, enjoy my husband and new life. Can you help me? May God Bless you ,,, |
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Dr. del Junco Jr. (Doctor) |
Dear Mary- |